continued search for a treatment that works

I have been through B12 treatment which helped a little and valtrex treatment which did not work . I am in the process of seeing whether being treated with disulfram drug is a good fit. My ME/CFS doctor recommended it. I went to a lyme disease specialist (not sure why but I trust my ME/CFS doctor. The specialist said that disulfram was not right for me. He took some more tests and he and my ME/CFS doctor will talk to see whether I will get the treatment with disulfram or not.

In the meantime as I was reading through more and more ME/CFS books scientific articles and clinical trials I came across several books that started to talk about another form of medicine, functional/integrative medicine. These books were written by ME/CFS clients whose energy level improved. Not up to 100% but maybe 70%. I will take that anytime given that I am currently swinging between having 30% and 40% of my pre-ME/CFS energy.

The type of treatment they referred to looked at various systems (i.e.,there are 11 systems in the body but only 5 or so pertain to ME/CFS) how they work in our body. ME/CFS is a process wherein multiple systems are interacting in a negative causing these systems to become dysfunctional. For example, when looking at energy flow in the body. There is one part of energy flow that involves the workings of the energy batteries in cells called mitochondria. In a healthy individual the ATP changes to ADP and release regular energy. In individuals with chronic fatigue (ME/CFS) the energy never goes up to ATD but stays down at APD levels causing the mitochondria stop working and making this cycle dysfunctional. Or the system involving the microbiome. We each have system in our bodies that includes the gut and the level of positive and negative microbiomes in the gut. Microbiomes are a community of microorganisms (such as bacteria, fungi, and viruses) that inhabit a particular environment and especially the collection of microorganisms living in or on the human gut. Apparently there are negative and positive microbiomes and it is necessary for good health and energy flow for there to be more positive microbiomes than negative microbiomes. If there are more negative microbiomes than more positive a condition called “leaky gut”. In which negative microbiomes leak out of the gut and cause havoc with the body and negatively impact multiple organs. This working with systems in the body and focus on the biome made sense to me. I also had this urge to supplement the treatments my doctor came up with. I had the education to do so (just not always the energy. Slowly as I read about the above I came across a book that brought it all together written by a doctor. Dr. Teiltelbaum has had ME/CFS and was able to ultimately join life again. Which meant not to return to my pre ME/CFS life for that was not possible but to live by actively managing my life which include being as efficient as possible with the energy I had, forgiving myself for getting ill and losing energy in the first place, accepting reality, and focusing on this new form of treatment. So I bought the supplements and vitamins that Dr. Teitelbaum prescribed and looked for a good clinic to test my systems and see what was malfunctioning. I found a clinic in Manhattan (where I live) run by a husband and wife team who studied under Dr. Teitelbaum and made an appointment to go to the clinic. Here I go again another treatment but feeling like this one may help me get back more and more of the energy which I lost.